CFRI has announced a guide to help people living with CF understand benefits available through insurance and Social Security. The following introduction was included in the CFRI announcement:
“Children and adults with cystic fibrosis (CF) need some form of insurance coverage to help pay for medical care and medications needed to treat the disease. Beth Sufian, the author, has developed a general guide with Gilead Sciences, Inc. to assist people with CF, their families, and healthcare providers in identifying potential health insurance policies offered by an employer, and government programs such as Social Security benefits, Medicaid, Medicare, and state-government programs. In addition, the Affordable Care Act may help people with CF access coverage.
“After reading the guide, you may have questions about your ability to access insurance coverage or Social Security benefits. At the end of the guide, you will find a list of additional resources for information. You can also contact the Cystic Fibrosis Legal Hotline or the Cystic Fibrosis Social Security Project at 1-800-622-0385.”
You can view the guide here: A_Guide_to_Health_and_Social_Security_Benefits_for_People_with_CF_11.7.12 After opening the guide, you have the option of saving it to your computer for future reference.