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May

Input Request: Advanced CF Lung Disease Guidelines

CF Foundation Community Voice has issued a call for public comment on the draft Advanced CF Lung Disease Guidelines. Here is their announcement:

The CF Foundation would like your input on the draft of the Consensus Guidelines for the Care of Individuals with Advanced CF Lung Disease.

A committee of CF health care providers, two adults with CF, and a parent of an individual with CF researched and developed the consensus recommendation statements presented in the draft. We hope that you will add your input and feedback to ensure that our community issues actionable practice recommendations for advanced CF lung disease.

If you are interested in this opportunity, please review the Consensus Guidelines for the Care of Individuals with Advanced CF Lung Disease.
 
Please read the instructions that are listed on the first page of the survey and submit your comments using the button below by Thursday, May 23, 2019 at 5:00 p.m., ET. You will be able to provide feedback on each recommendation and have the opportunity to provide input on other sections as well.

Click Here to Submit Comments

We value your input. Thank you in advance for taking time to review and provide us with feedback on this important aspect of CF care.

If you have any questions, please contact Sarah Hempstead at shempstead@cff.org.

Sincerely,
Albert Faro, Erin Tallarico, and Sarah Hempstead

Albert Faro, MD
Senior Director of Clinical Affairs
Cystic Fibrosis Foundation

Erin Tallarico, RN, BSN
Director, Lung Transplant Initiative
Cystic Fibrosis Foundation

Sarah Hempstead, MS
Clinical Practice Guidelines Sr. Specialist
Cystic Fibrosis Foundation

Please take the time to review the draft guidelines and submit your observations. Your perspective can help improve this product – and influence your future care.


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