This announcement was distributed by Cystic Fibrosis Foundation Community Partnerships:
Adults with CF and their families are invited to attend the next CF MiniCon: Self-Care and Relationships from 7-10 p.m. ET on Tuesday, Feb. 27. (Please note virtual events are not open to Care Center staff.)
This virtual event will provide a space for attendees to connect and participate in open and honest dialogue around advocating for your or your loved one’s care and maintaining relationships with care teams, your support systems, and yourself.
The CF MiniCon will feature a panel discussion followed by small group video breakouts. Please note this event is open to participants age 18 or older.
Check out the agenda and register now at cff.org/minicon!
This additional information is taken from the registration site.
Managing the emotional and physical aspects of cystic fibrosis is a lot of work. The daily tasks of organizing medications, managing doctors’ appointments, doing treatments, eating appropriately, and getting enough rest can take a toll. People with CF, their spouses, partners, parents, and others in the support system all play an important role in managing life with CF.
This CF MiniCon will open with an hour-long panel discussion on how best to advocate for and support loved ones, while making time for self-care. Join our panelists as they share their stories: Somer Love, a 38-year-old with CF; Julie Riedy, a spouse of someone living with CF; Drew Strube, a father of a child living with CF
After the panel session, attendees will participate in small-group video breakouts with others that share their connection to CF to talk about their experiences with self-care and maintaining relationships.
Participants in previous CFF virtual conferences have given high marks to the program on both the content and the technology. We encourage you to check out this opportunity to learn from the experience of your peers – and share your experiences so that other can learn from you.