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May

Community Voice Survey on Evolving Needs

The Cystic Fibrosis Foundation, through the Community Voice initiative, has been expanding its interaction with people living with CF and their immediate support team. They have produced a survey to gather your input for setting the direction and priorities for community involvement. Here is their request for your help:

We’re making progress each and every year on cystic fibrosis research, treatments, and care. And as research and care are changing, so too are the needs of the CF community.

We want to hear from people with CF and their families and loved ones about how the Foundation can work to support and strengthen the CF community in light of these changes. We are asking people with CF and their families and loved ones to take a 15-minute survey to share your views on how the Foundation can work to support and strengthen the CF community. Your insights will inform our approach to meeting the evolving needs of people with CF over the next five years, and how we might work with others.

To participate in the survey, please click the link below by Sunday, May 12, 2019 at 11:59 p.m., ET.For participating, you can be entered into a drawing to win a one of ten $10 Amazon gift cards.

Take the Survey

We will share key themes that emerge from this survey in the next few months. Please feel free to share this opportunity with others who might be interested in participating.

 

Thank you for your time and consideration.

Best,
The Community Voice Team
 
 

As a major national organization, the CF Foundation is able to develop support beyond the capacity we have locally. We encourage you to participate in the survey to point the Foundation in a direction of greatest benefit to you.

NOTE: The survey recognizes the participants IP address, so you may have clean your browser history and cookies if more than one person in your household wants to complete the survey.


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