CFFC Facebook Posts – September 2018 – Part 2
For those who do not visit Facebook, here are the posts to the CFFC page for the Second half of September.
09/16/2018 – Gunnar is Gross – Loving someone with CF means never making them say they’re sorry.
09/17/2018 – The Claire Wineland Message I Hope We Never Forget – Mighty messages to make the most of life with CF.
09/18/2018 – Monday Morning Thoughts: My Visit to CFF, Smart Report, and Disaster Relief – Once again, Gunnar Esiason presents thought provoking (and useful) topics in is Monday musings.
09/19/2018 – Success with Therapies Research Topics – Please help CFF investigate ways to improve care outcomes.
09/20/2018 – Electronic Nose Offers Easy, Accurate Test for CF in Children, Pilot Study Finds – Non-invasive technology could be a big boon when working with children.
09/21/2018 – How to tell someone about your chronic illness – Some Canadian CFers share ideas on how to (or not to) share information about CF.
09/22/2018 – Demystifying the Colonoscopy – Another way that CF makes your .treatment regimen different.
09/23/2018 – Helping CF Teams know when to talk about transplants – The decision to proceed with transplantation is very subjective, but objective science can improve the decision-making process.
09/24/2018 – Dietary Flavonoids May Help in Managing CF Through Impact on Gut Bacteria, Small Study Suggests – This study shows that elements of your diet may have an impact on lung disease; however, further study is required to determine specific dietary recommendations,
09/25/2018 – How Are Drugs Priced? – The cost of medications is a hot topic in the national health care debate and is of particular interest in the CF community. This blog post presents one individual’s analysis; however, the source of the cited data is not identified.
09/26/2018 – BreatheCon – It’s not to late to register for this event coming up Friday and Saturday. [NOTE: It is now too late to register.]
09/27/2018 – Cases of Injustices, Humiliations, and Sorrows – We like to share positive stories, but that’s not a complete picture. As this writer says, sometimes you just have to vent.
09/28/2018 – My Emotional Wellness Toolkit – Mental health is a critical component in the CF care plan. This blog presents some strategies to address the emotional side.
09/29/2018 – Darcy’s Blog: Guilt and Sacrifice – This blog is about a part of CF’s emotional strain this is seldom talked about.
09/30/2018 – Telavancin Promising Potential Treatment Option for MRSA in Cystic Fibrosis Patients – Another entry in the search for effective treatment of MRSA. The article uses technical jargon, but core message is clear.