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CFFC Facebook Posts – November 2018 – Part 2

For those who do not visit Facebook, here are the posts to the CFFC page for the second half of November.

11/17/2018New Test of Mucus Properties May Help with Coughing and Airway Clearance in CF – If you have to cough, you want it to be effective clearing the mucus in your lungs. This research may help with that.

11/18/2018Rethinking Our Reactions to ‘Five Feet Apart’ – The movie “Five Feet Apart” has generated a lot of debate . Today and tomorrow, we will present views from each side f the discussion. Today’s link is on the pro side.

11/19/2018“Five Feet Apart” is a Dangerous Misrepresentation – The movie “Five Feet Apart” has generated a lot of debate . Yesterday and today, we are presenting views from each side f the discussion. Today’s link is on the con side.

11/20/2018Hypertonic saline may help babies with cystic fibrosis breathe better – Adults have found benefits from hypertonic saline and now those benefits have been proven for infants.

11/21/2018Learning Not to Compare Myself to Others When Setting Goals – A reminder to distinguish between setting your own goals and being driven by the goals of others. [BTW: The advice to stay away from social media does not apply to following the CFFC Facebook and Twitter pages. 😉 ]

11/22/2018 – Happy Thanksgiving. You just have to review the prior posts about treatment advances and individual success stories to see how much we have to be thankful for.

11/23/2018CF Roundtable Autumn 2018 Issue – A little later than usual but still worth the read.

11/24/2018New Tissue-specific Delivery of CRISPR/Cas9 Aided by Moth Virus and Magnets, Study Shows – Who knew that a moth virus and magnetic particles may be a path to target gene editing.

11/25/2018Navigating My Newlywed Life With CF – Just like every other aspect of life, marriage with CF has it’s unique challenges.

01/26/2018Nutritional Well-Being After Transplant Measure of Likely Lung Health, Study Finds – The importance of attention to nutrition doesn’t end with lung transplantation.

11/27/2018The role of social media in the CF community and how it relates to healthcare provider relationships – Social media is playing a bigger role in our lives. Here is a survey that explores the role of social media in CF care.

11/28/2018P. aeruginosa Toxin May Be Reason for Single Strains Found in CF Infections, Study Reports – Turns out that Pseudomonas is nastier than we thought; killing off its bacterial competitors; however, that knowledge may be turned against the monster.

11/29/2018Getting By With a Little Help From My Friends – This is exactly why we formed CFFC – to fill the space outside medical expertise with empathetic support.

11/30/2018CFTR rescue with VX-809 and VX-770 favors the repair of primary airway epithelial cell cultures from patients with class II mutations in the presence of Pseudomonas aeruginosa exoproducts – We think of CFTR modulators as corrections for thick mucus, but this abstract indicates that they are helpful in repairing damaged lung cells.

 


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