For those who do not visit Facebook, here are the posts to the CFFC page for the first half of November.
11/01/2018 – Why Are Our Doctors Not Discussing Herbal Supplements with Us? – This article presents an important discussion. Our past president, Kori Tolbert Doherty, is a proponent of natural medicines when approached thoughtfully in conjunction with standard CF treatments. This topic was addressed as the keynote presentation at CFFC’s 2014 Education Day (CF Education Day a Success).
11/02/2018 – 5 Requests for My Friends and Family This Flu Season – It’s a good time to remind your family and friends of the steps that will help you stay healthy.
11/03/2018 – How to Talk to Kids About Cystic Fibrosis – A useful guide for one of the many tough parts of living with CF.
11/04/2018 – Two Opportunities for Input Regarding Your Care – Surveys on ENT guidelines (deadline 11/8) and advisory councils (deadline 11/18).
11/05/2018 – For Cystic Fibrosis Lung Infections, How Well Antibiotics Work May be Affected by pH, Oxygen – A study considering the entire lung environment suggests a new methodology for determining antibiotic treatments.
11/06/2018 – Choosing How I Approach My Daughter’s Diagnosis – For a parent, receiving the CF diagnosis can be the scariest, most mind boggling and loneliest time. This story tells how one woman overcame her initial shock.
11/07/2018 – Exciting Revelations from the NACFC 2018 Poster Sessions, Part 1 – First of two articles that give glimpse of the topics presented at NACFC beyond the full presentations. The article presents a brief synopsis of the selected posters; however, the article includes a link to a more detailed PDF of all poster sessions. [Warning, the language can be pretty dense.]
11/08/2018 – Exciting Revelations from the NACFC 2018 Poster Sessions, Part 2 – Second of two articles that give glimpse of the topics presented at NACFC beyond the full presentations. The article presents a brief synopsis of the selected posters; however, the first article (posted here yesterday) includes a link to a more detailed PDF of all poster sessions. [Warning, the language can be pretty dense.]
11/09/2018 – Cystic fibrosis and genetic screening: time for a conversation? – This article discusses the background on a survey designed to collect views on genetic screening from the CF community before ethical and practice standards are established. The survey is limited to individuals living in the UK; however, the results will be informative for discussion in the US.
11/10/2018 – Coping with the loneliness of CF – Comments from the Canadian CF community on how they deal with the isolation that often comes with CF.
11/11/2018 – A Daughter’s Perspective – A caring look at transplant through a young woman’s eyes.
11/12/2018 – Worse CF Lung Outcomes Linked with Mutations Causing Iron Overload Disorder, Study Finds – Having CF does not give you a pass on any other health concern, but it’s nasty when a second mutation can make CF more challenging.
11/13/2018 – Support CFFC through Amazon Smile – Since we are already seeing promotions for holiday shopping, we want to remind you that you can support CFFC through your Amazon purchases.
11/14/2018 – Majority of CF Patients in Small Study Treated with Antibiotics at Levels Too Low to Fight Lung Infections – This study shows there is more to antibiotic treatment than just selecting the drugs to use.
11/15/2018 – My Slide Into Substance Misuse – We are once again reminded that people living with CF are not exempt from the problems that plague the rest of the population.