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Nov

CFFC Facebook Posts – November 2017 – Part 2

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of November 2017.

11/16/2017SNSP113 Aids Airway Clearance, Fights Pseudomonas Infection, Early Studies Show – Follow up on earlier post with reports from this year’s NACFC.

11/17/2017The Future is Now, Scientists Attempt Gene Editing Inside a Human Being – Gunnar talks about a man standing at the frontier of gene therapy.

11/18/20175 Ways to Keep Your Toddler Busy During Treatments – Here are some simple tips which, from personal experience, really work.

11/19/2017To save a young woman besieged by superbugs, scientists hunt a killer virus – An incredible story of one families hunt for a unique treatment for B. cepacia. There success will hold promise for others.

11/20/2017Handwashing: Clean Hands Save Lives – While we missed Global Handwashing Day, the advice is always relevant.

11/21/2017Some people with cystic fibrosis might live longer because of genetic mutations – Research suggests that mutations other than the CFTR gene may impact the severity of CF.

11/22/2017Coming to Expect More From My Life – A woman’s story about putting statistics aside and getting down to living.

11/23/2017Italians Find Molecule That Inhibits Anti-inflammatory and Anti-bacterial Defenses in CF – The CFTR mutation may affect more than chloride transport.

11/24/2017Support CFFC through Amazon Smile – If you have survived (or avoided) Black Friday), you may be looking forward to Cyber Monday as your approach to holiday shopping. You can support CFFC with on-line purchases through the Amazon Smile program. Details on the program and designating CFFC as your charity are presented in the linked page. Happy Holidays!

11/25/2017The Evolution of CF Treatments – An interesting retrospective.

11/26/2017Breathe In Ep. #7 – Coping with Disease Progression – Gunnar and the Salty Sisters talk about “the moment” when CF progression becomes real.

11/27/2017Finally Finding Someone Who Gets It – True empathy comes from someone who has walked the same path. This article is a success story from the CF Foundation’s CF Peer Connect program.

11/28/2017CF Patients Increase Bacterial Load But Lose Bacterial Diversity As They Age, Study Finds – This is the sort of basic research that forms the basis for new medicines and treatment protocols. The change in the microbiota is also one factor in the change in the antibiotic mix over time.

11/29/2017Vertex Doubles the Number of Scholarships Available for People Living with Cystic Fibrosis and Their Family Members – Vertex “All In” Scholarships Filing Deadline is January 3m 2018.

11/30/2017Breathe In Ep. #3 – Cystic Fibrosis Related Procedures – Through this podcast, you can compare your experience with various procedures to those of Gunner and the Salty Sisters.

 


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