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Nov

CFFC Facebook Posts – November 2017 – Part 1

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of November 2017.

11/01/2017My Mother’s Life Overshadowed CF – A story of determination and a life lived fully.

11/02/2017The microbial anatomy of an organ – Advanced technology may provide a new way to use data to better target treatments.

11/03/2017Phone or Video Messaging Is a Viable Option for Monitoring CF Patients, NICE Guideline Says – A promising treatment standard from across the pond. Telemedicine not only saves on travel time but also reduces the risk of cross-infection in clinic settings.

11/04/2017Breathe In Ep. #4 – Dating – Making awkward moments even more awkward. Just one more “benefit” of CF.

11/05/2017How Theratyping Will Bring Modulators to More People With CF – A report from the recently concluded North American Cystic Fibrosis lays out the progress made in expanding the use of CF modulators.

11/06/2017‘Real-Life Walk to Remember’: Strangers Help Give Woman in Need of 2nd Double Lung Transplant Her Dream Wedding – While this may seem like an exceptional story, it is typical of those living with CF grabbing as much of life as they can.

11/07/2017Orkambi Reduces Main Biomarker of CF, Vertex Says in Updated Results on Four Therapies – Updated results on the research into the effectiveness of Orkambi in children.

11/08/2017Cystic Fibrosis Foundation Awards Sen. Susan Collins the Breath of Life Legislator Award – Sen. Collins made headlines in the national health care debate. CFF has recognized her efforts on behalf of the CF community.

11/09/2017CF Roundtable – Autumn 2017 Issue – As always, the CF Roundtable newsletter is full of interesting and useful articles. The focus topic (Dating And Relationships With CF) is consistent with some of the links we have posted recently.

11/10/2017Sinus Health Post 3- Oil Pulling – CFFC president Kori Tolbert Doherty has published the third post in her series on the methods she uses to mitigate the sinus problems experienced by people living with CF.

11/11/2017Home Energy Assistance Program 2017 – As the temperatures drop below freezing, here is timely information on home heating financial assistance.

11/12/20176 Ways to Help You Take Care of Your Lungs – There are no surprises in this list, but sometimes it’s good to state the obvious to bring the ideas into our conscious mind.

11/13/2017 Cystic Fibrosis Christmas Ball 2017 – The annual Christmas Ball raises money for Just Breathe Foundation. The foundation makes grants to individuals in the local CF community.

11/14/2017Patient Voices: Cystic Fibrosis – When our cause makes a major media outlet, you’ve got to share it. [Thanks, Chris, for pointing us to this NYT article.]

11/15/2017How I Overcame B. cepacia’s Emotional Hold – Living with CF – that is, getting the most out of life despite CF – means conquering emotional, as well as physical, challenges.

 


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