CFFC Facebook Posts – May 2018 – Part 1
For those who do not use Facebook, here are the posts to the CFFC page for the first half of May 2018.
05/01/2018 – Researchers ID Genetic Catalysts That Accelerate Evolution of Antibiotic Resistance – Part of a good defense is knowing your enemy. This study holds promise for overcoming resistant organisms.
05/02/2018 – CFFC Education Night Taking Shape – Check out this report on our planning progress.
05/03/2018 – Social Behaviors and Perceptions of Tobacco and Marijuana – CF Foundation has sponsored a survey seeking input regarding attitudes toward inhaled substances.
05/04/2018 – No-Stress Travel Tips for People With CF – Winter may finally be gone so we can start thinking about summer travel. This blog post offers suggestions if your travel will include airline flights.
05/05/2018 – What we are hopeful for – Pretty sure that the hopes for CF are universal. Check out how our Canadian friends respond to the question “What are you hopeful for?”
05/07/2018 – Saying, “Kids Born Today Can Expect to Live to be X Years Old” Alienates Adults – Gunnar shares his thoughts on growing older with CF.
05/08/2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12 – Professionals in Europe are actively addressing the challenges of rare diseases. There may be outcomes which are translatable to the US.
05/09/2018 – How My Perception of the Vest Changed – “Old timers” will remember CPT or cupping. In this blog, a mother offers her opinion on the benefits of switching to the vest.
05/10/2018 – Vote on 2018 NACFC Livestream Session – CF Foundation is steadily expanding access to the national CF conference. Take this survey by Friday 5/11 to influence the sessions that will be available live through the internet.
05/11/2018 – CF Roundtable – Spring 2018 Issue – The focus topic in the latest issue of CF Roundtable is mental health. There is a lot of useful information on this and other topics.
5/12/2018 – Living life to the fullest with CF – Some of our Canadian friends describe what they mean by “living life to the fullest.”
05/13/2018 – Cystic Fibrosis Podcast 183: You have a new set of lungs! What should you expect next? – We know intuitively that lung transplantation is a big deal. This podcast, featuring the lead surgeon at Columbia, describes the challenges in the first year (at least) following a successful transplant.
05/15/2018 – Cystic Fibrosis Foundation Awards $11M to Develop Therapies for Patients with Nonsense Mutations – This announcement is consistent with CFF’s declared policy to seek solutions for all mutations.