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CFFC Facebook Posts – July 2018 – Part 1

For those who do not use Facebook, here are the posts to the CFFC page for the first half of July 2018.

07/01/2018Trying to Weather the Emotional Storm of Physical Breakdown – This story demonstrates how important emotional strength is to surviving CF.

07/02/2018Nanoparticles Therapy May Be ‘One-Size-Fits-All’ Approach for CF, Study Suggests – An interesting new approach to overcoming the CFTR defect in the lungs.

07/03/2018Monday Morning Thoughts: Advice for Parents – Coming Home From the Hospital, Coughing is a Good Thing! and Stop Using “We” – As usual, Gunnar’s thoughts are thought provoking.

07/04/2018Growing Older With CF – Observations from across the border on growing older with CF.

07/05/2018Addressing Mental Health Issues Important for Cystic Fibrosis Patients, Experts Say – The significance of mental health in CF care is gaining broader recognition. This articles provides highlights from the European CF conference.

07/06/2018 – Education Night Update [no link, registration is closed]- We’ve settled on a variety of appetizers accompanied by three different sliders for the refreshments at Education Night. There will also be complementary soft drinks, wine and beer. Oh, and don;t forget dessert. This should keep your energy up while you learn and share.

07/07/2018How My Daughter’s Diagnosis of Cystic Fibrosis Is Like a Ticking Clock – The CF balancing act – finding time for the things you want to do while making time for the things you have to do – starts from the time of diagnosis.

07/08/20187 Things Your Partner with CF Probably Isn’t Telling You – Some thoughts about “secrets” in a CF relationship.

07/09/20184 Ways I’ve Learned How to “Adult” With CF – Transition to adulthood is more complicated with CF.

07/10/2018Five things our CF researchers are working on – The view on CF research from across the pond.

07/11/2018Monday Morning Thoughts: My First Intestinal Blockage, Teaching a Puppy to Swim, and Team Boomer On Top of the World! – This week’s musings from Gunnar carry one significant message and two more entertaining ones.

07/12/2018Marine-Based Fatty Acids Can Reduce Inflammation, Improve Fat Absorption in CF Patients, Study Shows – Nobody really wants to take more pills, but this study shows positive results from a dietary supplement.

07/13/2018 – One Week to Education Night [no link, registration is closed] – We’re getting close and there is still time to register to join us for a social, as well as informative, evening with your peers in the CF community. Please sign up by Monday, July 16th so we can make final arrangements for the refreshments.

07/14/2018Delivering Hospital Help Packets – The longest standing benefit offered by CFFC is our Hospital Help Packets.

07/15/2018Vertex Pharmaceuticals opens expanded San Diego research center with focus on cystic fibrosis – Vertex (one of our Education Night sponsors) is making further commitments to find better treatments for CF.


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