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CFFC Facebook Posts – December 2018 – Part 2

For those who do not visit Facebook, here are the posts to the CFFC page for the second half of December.

12/16/2018The Program for Individualized Cystic Fibrosis Therapy – An exciting development in treatment protocol is being developed across our northern border.

12/17/2018I Know What I’d Do Without You – One of the toughest parts of being part of the CF community is dealing with the loss of a loved one or friend. This blog post presents a positive approach.

12/18/2018Specific Sweat Test Better Detects Kalydeco’s Effects on CFTR Function, Study Suggests – This study shows the possibility testing the effectiveness of CFTR modulator therapies.

12/19/20185 Things I Wish People Knew About My Life With CF – The first “thing” in this list is the emotional toll of CF. The remaining four items can contribute to that emotional toll.

12/20/2018Experimental findings support a connection between mucins in the lung and pulmonary fibrosis – This article (which is a bit dense) points to a genetic factor beyond CFTR that contributes to advanced lung disease.

12/21/2018Monday Morning Thoughts: Revolutionary Study in Patient Safety, Lea – Gunnar’s blog pulls together a couple of themes from recent posts to our Facebook page.

12/22/2018Survey Opportunity: Exercise and Airway Clearance – Exercise is recognized as an important element of Cf treatment protocol. This survey being conducted by the University of Nottingham is investigating the balance between exercise and airway clearance techniques.

12/23/2018New Dual-antibiotic Powder Inhalation More Effective Against Drug-resistant Bacteria, Researchers Say – More promising research for dealing with resistant bacteria.

12/24/2018Finding the Strength to Ask for Help – Once you have recognized the emotional toll of a chronic disease, you still have to learn to ask for help.

12/25/2018Using Food as Medicine to Manage CF: A Nutritionist’s View – This season of overeating seems like an appropriate time to review the importance of nutrition in CF treatment.

12/26/2018Celebrating Works Created by the CF Community – These brief bios are just a just a glimpse at the positive, creative energy within our community.

12/27/2018Blood test could lead to cystic fibrosis treatment tailored to each patient – Another step towards personalized treatments.

12/28/2018My Cystic Fibrosis Christmas List – How does Gunnar’s wish list match up with yours?

12/29/2018Your CF Partner Can Help Make You Healthier – Finding a compatible partner can be tough, but this writer says it is well worth the effort.

12/31/2018CF Is Nothing But a Plot Twist in Eden’s Story – These parents have the right attitude; that is, CF is just one part of their daughter’s story.


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