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CFFC Facebook Posts – December 2018 – Part 1

For those who do not visit Facebook, here are the posts to the CFFC page for the first half of November.

12/01/2018Wintertime with CF – Advice for cold weather is pretty much the same on the other side of the Atlantic; but it’s always worth a reminder.

12/02/2018As Both Patient and Scientist, I’m Putting Nature’s Medicine to the Test – A scientists (self-interested) look into natural medicines.

12/03/2018Teaching My Kids Hard Truths About CF – Despite (or maybe because of) CF, being a mom is a rewarding experience.

 12/04/2018 Study Reveals How Cystic Fibrosis Affects Young Women’s Sexual Health – Speaking of moms and CF (see yesterday’s post), this study reminds us of the difficulties women with CF face in becoming a mother.

12/05/2018You’re Right To Be Frustrated With Inpatient Care – How does Gunnar’s view of hospital stays compare to yours?

 12/06/2018 – Christmas Ball 2018 – A reminder that the CF Christmas Ball will be held on December 22nd.This annual event raises money for Just Breathe, a charitable foundation that offers financial assistance to the local CF community.

12/07/2018Researchers Working on Vaccine Against P. aeruginosa Before Infection Sets In – Wouldn’t that be nice – stopping Pseudomonas before it gets started.

12/08/2018 Living in Limbo – This blog post touches on two topics that don’t get much attention: the anxious time between the decision to pursue transplant and actually being listed, and how certain events can exacerbate the depression associated with chronic illness.

12/09/2018 – Towards a treatment for gluten intolerance – We have shared stories about how research in other diseases has helped with CF.Here, we learn that CF research may help those with celiac disease.

12/10/2018 Active Community Voice Projects – You have opportunities to share your opinions on three topics being researched by CFF Community Voice.

12/11/2018 – Saying, “Well my doctor said” Diminishes Your Role as an Empowered Patient – Gunnar Esiason has a very personal view on patient empowerment.

12/12/2018 CF Patients Benefit from Virtual Learning, New Educational Programs – Continuing the theme of patient empowerment, this article presents a program that has successfully used patient knowledge and peer empowerment to attain positive outcomes in CF care.

12/13/2018Anne-Sophie Barrette: How can I not keep smiling? – This young Canadian woman gives a lesson for maintaining a positive attitude through tough times.

12/14/2018 Inhaled Hypertonic Saline Improves Lung Health in Preschoolers with CF, Study Shows – This study demonstrated benefits of beginninghypertonic saline treatments earlier in life.

12/15/2018 Feeling Guilty for Feeling Good – We’ve been raising awareness of the emotional toll of a chronic illness. This blog post draws attention to CF’s version of survivor’s guilt.


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