CFFC Facebook Posts – August 2018 – Part 2
For those who do not use Facebook, here are the posts to the CFFC page for the second half of August 2018.
08/16/2018 – Darcy’s Column: PTSD and Cystic Fibrosis – This entry from Gunnar Esiason’s blog represents two milestones. One, a blog from a significant other. Two, a focus on mental health issues.
08/17/2018 – Mutations in Genes Regulating Digestion Prevalent in CF Patients with Pancreatitis, Study Finds – It appears that CFTR mutations are not the only genetic aberrations that affect life with CF.
08/18/2018 – How I Handled My Son’s Diagnosis – This story is familiar to anyone who received the news of a CF diagnosis – no matter how long ago that discovery was made.
08/19/2018 – Identifying and Addressing 3 Barriers to Treatment Adherence – Medical advances are ineffective if you don’t comply with the treatment protocols. This article offer some suggestions for ensuring compliance.
08/20/2018 – Launch of CFI “Independent Living” Report – This article is interesting not only for the statistics, but also for a peek into life with CF in Ireland.
08/21/2018 – CF Pregnancy: The Words of 4 Mothers Who Have Had Babies – First of a two part series of interviews with four women with CF about their motherhood.
08/22/2018 – CF Mamas Discuss Pregnancy Health, Delivery, and Breastfeeding – Second of a two part series of interviews with four women with CF about their motherhood.
08/23/2018 – Cystic fibrosis impacts growth in the womb, research shows – This article shows that CF challenges begin before birth.
08/24/2018 – Evolution of CFFC – Some important news about – and opportunities with – CFFC.
08/25/2018 – Meeting My Donor’s Family – A poignant story.
08/27/2018 – Bioengineers Are Closer Than Ever To Lab-Grown Lungs – Lab grown lungs – grown from the cells of a potential recipient – would allow transplant without immunosuppressant drugs.
08/28/2018 – Grateful to Have Cystic Fibrosis (and other musings on Venture Philanthropy) – Amy is back on Gunnar Esiason’s blog to offer insight on the Cystic Fibrosis Foundation’s launch of venture philanthropy.
08/29/2018 – Firms Will Test Digital Platform to Help Patients Manage CF-Related Diabetes – Technology and the internet bring a new dimension to CF care.
08/30/2018 – Top 10 Tips to Help Students With CF Balance College Life – Timely tips as we approach the start of a new school year.
08/31/2018 – Measuring D-Lactate in Blood May Indicate Pancreatic Insufficiency in CF Patients, Study Suggests – Another tool to help the CF care team treat all aspects of CF.