CFFC Facebook Posts – March 2022 – Part 2
03/16/2022 – Advocate for CF Assistance – Cystic Fibrosis Foundation has created a portal to automate communication with your State representatives in support of the Adult Cystic Fibrosis Assistance Program. […]
CFFC Facebook Posts – March 2022 – Part 1
03/01/2022 – Dating and CF – Dating is full of emotions which, as with everything else, is complicated by CF. 03/02/2022 – Insights into a cystic fibrosis treatment may herald […]
CFFC Facebook Posts – February 2022 – Part 2
02/16/2022 – Why Particpate in a Clinical Trial? – This article from Cystic Fibrosis Australia contains some points specific to that country; however, clinical trial standards are consistent across national […]
Clinical Trials Alert – February 2022
Cystic Foundation released the following clinical trial alert in February. February 18, 2022 Study of Lefamulin in Adults with CF Status: Enrolling Description: This study will look at the safety […]
CFFC Facebook Posts – February 2022 – Part 1
02/01/2022 – Mark Cuban’s Cost Plus Drug Company Will Provide Much Needed Relief for Drug Costs – This is basically an opinion piece, but Gunnar Esiason provides a lot of […]
Opportunities to Provide Input Regarding Care
Cystic Fibrosis Foundation is seeking community involvement in the development of standards for two areas of care: post-transplant care and home IV treatments. The text of the requests from CFF […]
CFFC Facebook Posts – January 2022 – Part 2
01/17/2022 – Looking after your mental health and wellbeing in difficult times – Once you recognize the importance of mental health, you need strategies to deal with it. This article […]
CFFC Facebook Posts – January 2022 – Part 1
01/01/2022 – How Chronic Illness Affected My Education – This blogger has some thoughts on extending her CF school experience to deal with the impact COVID has had on education. […]
Clinical Trial Alerts – January 2022
Cystic Fibrosis Foundation issued the following clinical trial alerts in January: January 10, 2022 BALANCE-CF 1: Study of BI 1265162, a mucus clearance drug, in teens and adults with CF […]
Cystic Fibrosis Foundation ResearchCon 2022 Prioritization Survey
Cystic Fibrosis Foundation is seeking input to develop the agenda for ResearchCon 2022. Here is their request: The CF Foundation’s Community Conferences team is conducting a survey for the 4th annual […]