Clinical Trial Alerts – June 2022
Cystic Fibrosis Foundation issued the following clinical trial alerts on June 14th: Study of Trikafta® in people with CF ages 12 years and older who have partial function CFTR mutations […]
Research Study Design for Pancreatic Enzyme Replacement Therapy
Cystic Fibrosis Foundation’s Community Voice is seeking input on research parameters for new enzyme replacement therapies. The following is the text of their announcement, including links to an explanation of […]
CFFC Facebook Posts – May 2022 – Part 2
05/16/2022 – Artificial cell membrane channels composed of DNA can be opened and locked with a key – This research was not specifically geared to CF but artificially created channels […]
CFFC Facebook Posts – May 2022 – Part 1
05/01/2022 – Cystic Fibrosis Around the World: The Kingdom of Jordan – Another flashback to Gunnar Esiason’s series about CF experiences on other countries. This one has a nice tie […]
CFFC Facebook Posts – April 2022 – Part 2
04/16/2022 – What I Learned While Trying to Get Pregnant – The dream of parenthood is becoming more reality than dream in the CF world. This mom has some encouraging […]
Adapting to Post COVID Schools
School and CF have always been a challenging combination. The COVID-19 pandemic – and the recovery – added twists to that formula. The Cystic Fibrosis Foundation (CFF) has updated their […]
Community Grant Review of Tools for Remote CF Care Delivery
The Cystic Fibrosis Foundation is looking for volunteers to serve on the team to review grant applications for remote care tools. Here is the text of their request for participants. […]
2022 Kit Taylor Memorial Lecture
The Kit Taylor Memorial Fund brought us another informative evening through Dr. Jennifer Taylor-Cousar’s presentation entitled “CF Therapeutics: Great Strides & Future Directions.” Dr. Taylor-Cousar is the Medical Director of […]
CFFC Facebook Posts – April 2022 – Part 1
04/01/2022 – PMPRB court case outcome great news for cystic fibrosis – This article is specific to Canada; however, the subject is relevant to the current discussions in the US […]
Clinical Trial Alerts – April 2022
Cystic Fibrosis Foundation issued the following clinical trial alerts in April. April 6, 2022 Study of 4D-710 in Adults with Cystic Fibrosis Status: Enrolling Description: This study will test the […]