Update on “Five Feet Apart”
In November, we shared opposing viewpoints concerning the upcoming movie Five Feet Apart. The Cystic Fibrosis Foundation (CFF) has been receiving comments and inquiries reflecting the variations in reactions to […]
CFFC Facebook Posts – December 2018 – Part 2
For those who do not visit Facebook, here are the posts to the CFFC page for the second half of December. 12/16/2018 – The Program for Individualized Cystic Fibrosis Therapy […]
Survey Opportunity: Exercise and Airway Clearance
The CF Foundation Community Voice team shared information regarding a new survey opportunity. Their announcement follows. The Evidence Based Child Health Group at the University of Nottingham is working with […]
CFFC Facebook Posts – December 2018 – Part 1
For those who do not visit Facebook, here are the posts to the CFFC page for the first half of November. 12/01/2018– Wintertime with CF – Advice for cold weather […]
Active Community Voice Projects
CF Foundation’s community Voice is looking for input on a variety of topics. Here is the text of their request. We wanted to make sure you were aware of the […]
Clinical Trial Alerts – December 2018
Cystic Fibrosis Foundation distributed the following clinical trial updates in December. Click the trial title to get more details. OPTION: Study of AzurRx MS1819 in people with cystic fibrosis and […]
CFFC Facebook Posts – November 2018 – Part 2
For those who do not visit Facebook, here are the posts to the CFFC page for the second half of November. 11/17/2018 – New Test of Mucus Properties May Help […]
CFFC Facebook Posts – November 2018 – Part 1
For those who do not visit Facebook, here are the posts to the CFFC page for the first half of November. 11/01/2018 – Why Are Our Doctors Not Discussing Herbal […]
A Daughter’s Perspective on Transplant
We have added a new page to the Our Lung Transplant Story section of the site. A Daughter’s Perspective presents an essay written by the daughter of the transplant recipient. […]
Two Opportunities for Input Regarding Your Care
CFF’s Community Voice has issued requests for input on two different aspects of CF care. Here are the announcements including links to the online surveys. ENT Guidelines – Deadline November […]