Cystic Fibrosis Foundation has released a comprehensive reference document geared to the adult CF population. Their release states:
The face of cystic fibrosis is changing as adults with CF now outnumber children with the disease. As more people with CF reach adulthood and live independently, their needs change. The Adult Guide to Cystic Fibrosis is designed as a reference on many aspects of adult life with CF.
Being an adult with cystic fibrosis brings on some pretty distinct challenges. The Adult Guide to Cystic Fibrosis is a resource to help you manage your life and draws on the expertise of clinicians from adult CF programs, the Cystic Fibrosis Foundation, and others living with CF.
Whether you’re an adult, a teen preparing to transition to an adult CF program, a parent of a child looking ahead, or a friend or relative of someone with CF, you’ll find answers and insights in the Adult Guide.
The document provides 215 pages of information on 26 topics. There a two ways to obtain a copy of this document:
- From the CFF web site: https://www.cff.org/Life-With-CF/Daily-Life/Adult-Guide-to-Cystic-Fibrosis/
- Download from our reference library: Adult-Guide-to-CF
Links to the guide have been included on our Information Resources, Life with CF page.