Cystic Fibrosis Foundation (CFF) – National organization devoted primarily to funding cystic fibrosis research, accreditation of CF centers and other medical aspects of CF.
Rochester Chapter of CFF – Local chapter of the national CFF which conducts various fund raising events.
Blooming Rose Foundation – The BRF was created to give hope to families immediately following Cystic Fibrosis diagnosis.
Boomer EsiasonFoundation – The BEF represents medical and business communities joining with a committed core of volunteers to heighten awareness, education and the quality of life for those affected by cystic fibrosis.
Kids Wish Network – Kids Wish Network is a national 501(c)(3) organization that grants wishes to children living with life-threatening illnesses. The organization brings smiles to many deserving children who just need a break from their illness.
Wish for Wendy Foundation- The Wish for Wendy Foundation strives to increase awareness of cystic fibrosis and supports research aimed at finding a cure. The site is produced by Andy Lipman, a motivational speaker and a Cystic Fibrosis survivor. His motto: “I have Cystic Fibrosis, but it will never have me”