For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of March 2017.
03/16/2017 – Cystic Fibrosis Survival Rates in the United States vs. Canada – Gunnar’s take on the study we posted on Tuesday.
03/17/2017 – Clinical Trial Alerts – March 2017 – A second update from CFF for the month of March.
03/18/2017 – Understanding the Differences in Survival Between Canadians and Americans With CF – The Foundation’s statement regarding the study showing life expectancy differences between the US and Canada. (see posts on 3/14 and 3/16)
03/19/2017 – Vertex Acquiring Cystic Fibrosis Treatment CTP-656 from Concert Pharmaceuticals – Upside: consolidation of research into CF treatments. Downside(?): concentration of CF pharmaceuticals in a single company.
03/20/2017 – Your Pain Is Not Like Mine – An insightful story on one aspects of dealing with grief.
03/21/2017 – 6 Remarkable Things to Know About People Living With a Chronic Illness – A list with which you can most likely identify, but you might want to share this with acquaintances rather than explaining your experience.
03/22/2017 – “A Little Blood Makes a Big Cloud” – Gunnar talks about a frequent occurrence in the world of CF – a medical episode that disrupts your plans. [Advisory: he uses some coarse language.]
03/23/2017 – Two months to go! – CF Education Night is just two months away. Please complete our survey to aid our planning – including selection of discussion topics.
03/24/2017 – Saying Goodbye to Pediatric CF Care and Hello to Adult CF Care – Fortunately, the issues surrounding the transition from pediatric to adult care is now a common occurrence.
03/25/2017 – Night time routine with a chronic illness – Lauren Rowe uses humor to present the challenges of daily routines to deal with CF.
03/26/2017 – Reduced Diversity in Gut Bacteria Worsens as CF Lung Function Declines, Study Shows – Does this fall under the heading of “too much of a good thing?” Maintaining bacteria necessary for digestion while treating lung infections is just one more challenge for those living with CF.
03/27/2017 – Cystic Fibrosis Step-by-Step: Building a Treatment Routine – It may seem like common sense, but it never hurts to remind ourselves of the obvious.
03/28/2017 – Updates From a School Nurse With Three Students With CF in One School – As they used to say on TV’s The A Team, “I love it when a plan comes together.”
03/29/2017 – Sisters living with Cystic Fibrosis – This video (which is 29 minutes long) doesn’t present anything new, but it is a good look into life with CF (with pleasant accents).
03/30/2017 – Using Virus May Be Way to Fight Resistant Bacterial Lung Infections, Study Reports – Sometimes, getting a virus can be a good thing.
03/31/2017 – Clinical Trial Alerts – March 2017 – A third update from CFF for the month of March.