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CFFC Facebook Posts – July 2017 – Part 2

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of July 2017.

07/16/2017Cystic Fibrosis Around the World: Australia – Gunnar reports on the interviews with two adults with CF from “down under” as he nears the end of his world tour.

07/17/2017Connect With Other Young Adults With CF at the Next CF MiniCon – This virtual conference is geared for individuals finding their way in the world of adult CF.

07/18/2017SNSP113 Gives Antibiotics More Punch Against Bacteria Often Seen in Cystic Fibrosis, Study Find – A key element in research to improving treatments is making existing treatments more effective.

07/19/2017Why I Ride – Here’s an inspirational piece by CFFC President, Kori Tolbert Doherty, encouraging our community to participate in the 2017 Cycle for Life. She reminds us that the event is about building spirit as well as raising money for the Cystic Fibrosis Foundation.

07/20/2017Positive Early Study Results for Next-Generation CFTR Modulators – CFF reports on studies looking at drug combinations aimed at correcting the defect in epithelial cells.

07/21/201710 Tips for a ‘Common Sense Approach’ to Life With a Chronic Illness – The funny thing about common sense is that it seems obvious when brought to your attention, but you may overlook it without reminders.

07/22/2017Fifteen National Patient Advocacy Organizations Urge Congress to Oppose the ACA Repeal – Cystic Fibrosis Foundation is one of the organizations speaking out about the communities they represent. The joint statement also urges bipartisan efforts to address weaknesses in the current system.

0723/2017Cystic Fibrosis Around the World: United States of America – Gunnar brings his world tour home with two interviews.

07/24/2017Time to Tee Up – Enjoy a 9-hole round of golf while supporting CFFC.

07/25/2017Sinus Health Post 1, Posts for the CF Community and anyone else who knows the ouch of sinus troubles – Our Prez Kori shares what she has learned in taking care of her sinuses.

07/26/20172 Dry Runs and a Transplant: My Journey Toward New Lungs – Here’s a glimpse at the angst and uncertainty that comes with the wait for new lungs.

07/26/2017Inhaled Antibiotics – This discussion of inhaled antibiotics is the fourth of a series of four CFF videos regarding treatment options.

07/27/20175 Treatments That Changed Cystic Fibrosis Care – No doubt Cf treatments have advanced over the year’s. Cystic Fibrosis (The UK’s version of CFF) does their take on the top 5 big changes.

07/29/201710 Quotes to Help You When You’re Feeling Down – You might get a boost from some of these quotes.

07/30/2017Cystic Fibrosis Around the World: A Reflection – Gunnar considers the information he gathered in the first phase of his research into life with CF in other countries. As noted at the beginning of this article, interviews in additional countries will follow.

07/31/2017Setting the Record Straight About Coughing Up Blood – Some clear talk on a scary topic.


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