For those of you who don’t follow CFFC on Facebook, here are the original posts made to our page during July 2016.
07/03/2016 – Social Security Administration Updates Eligibility Requirements for Disability – Important news for those looking for financial support.
07/05/2016 – Unequal Time: Lessons From Growing Up With Siblings With CF – Another challenge of dealing with a chronic disease – giving equal time to others in the family.
7/06/2016 – iSPERSE Platform for Pulmonary Diseases by Pulmatrix, Inc. – We were pointed to this video by Cystic Fibrosis News Today. It is basically a commercial but it contains information on an exciting new form of inhaled delivery for treatment of chronic lung diseases including CF.
07/07/2016 – What Doctors Know About How Bad It Is, and Won’t Say – Thanks to Chris Kvam for sharing this article. It’s a nice follow up to the discussions at CF Education Day addressing patient activation and building strong teams with care providers through improved communication.
07/08/2016 – My Morning Routine – Cystic Fibrosis – This video won’t providing any new information to CF veterans, but it may be useful for sharing with family and friends who are unfamiliar with the burden of treatments including the continuation of IV meds after an in-patient stay at the hospital.
07/09/2016 – Cystic Fibrosis Drugs Can Be Tested First Using Patient’s Own Stem Cells in Laboratory – Research in Europe presents the possibility of personalized treatments and avoiding ineffective treatments.
07/10/2016 – Summertime Tips – Most of you in the CF community know these tips, but it never hurts to refresh your memory.
07/11/2016 – What CF Can and Cannot Take Away From Me – Establishing a sense of control is difficult when battling a chronic illness. Here’s a look an one person’s approach.
07/13/2016 – Researchers Think Ibuprofen, Taken at High Inhaled Doses, Can Treat Cystic Fibrosis – Researchers looking to manage inflammation with fewer side affects.
07/15/2016 – Kicking and Screaming: Dealing With CF and Anger – Life with CF evokes a wide variety of emotions. In this CF Community Blog, Ali reminds us that we don’t always have to be brave.
07/18/2016 – Why Healthy Sexuality and Intimacy May Lead to a Healthier You – This may be an uncomfortable topic for some but it is important to understanding the extent of challenges encountered in a life with CF.
07/20/2016 – Please Don’t Ever Complain – A pretty amazing point of view from someone who has earned the right for at least a little complaining.
07/21/2016 – Inhaled Alkaline Buffer Could Help Cystic Fibrosis Patients Clear Lungs of Bacteria – An approach to enhance natural antibacterial defense in people living with CF.
07/24/2016 – Interleukin-22 Fails to Protect Against Key CF Pathogen and Promotes Weight Loss in Animal Study – Even research that fails to meet expectations is important in the search for more effective CF treatments.
07/25/2016 – 9 Tips for Managing a Busy Schedule With CF – Things you probably already know, but a concise reminder never hurts.
07/27/2016 – Product Candidate Kills Pseudomonas aeruginosa Isolates from Cystic Fibrosis Patients – Promising research to combat resistant Pseudomonas aeruginosa.
07/28/2016 – 15 Reasons Why I Never Hide My CF – Some practical experience to encourage people to be open about their life with CF.
07/29/2016 – Take Action: How to Become a Cystic Fibrosis Advocate – Some tips for getting the most out of your conversations promoting support for people living with CF.
07/31/2016 – Scientists Explore Potential and Challenges of New Technologies at Savannah Research Conference – An interesting insight to the many parts of CF research and what the CF Foundation is doing to bring those pieces together.