For our web visitors who do not follow CFFC on Facebook, here are the posts added in the first half of February 2017.
02/01/2017 – Ask Gretchen: How Can I Control My Blood Sugar? – This CFF blog post contains resources to better manage the challenge of CF related diabetes.
02/02/2017 – New Mouse Model May Lead to CF and COPD Therapies, Study Says – You may not like to deal with small rodents, but some are contributing to the search for better CF treatments.
02/03/2017 – CFF Advocacy Action Center – As a follow up to Tuesday’s post, here’s a link to the CF Foundation’s page that lists options for connecting with government officials to promote policies beneficial to the CF community.
02/04/2017 – Carbohydrate That Promotes Biofilm May Be Key to Treating Pseudomonas Infections – Another avenue of research to find more effective treatments for Pseudomonas.
02/05/2017 – Clinical Trial Alerts – February 2017 – This post on the CFFC web site lists the clinical trial alerts distributed on 2/2/17. Any additional alerts issued in February will be added to this page and an announcement will be posted on FB
02/06/2017 – Dealing with Disease Progression – Gunnar and Julia don’t shy away from tough topics. Hear what they have to say in this podcast dealing with the inevitable progression of CF.
02/07/2017 – 6 Tips for Staying Organized With CF – Keeping organized gain reduce the stress in daily treatments.
02/08/2017 – First-of-its-kind Study Explores if Stem Cells Might Lessen Inflammation in CF Patients – Another approach to introducing non-CF genetic material to fight lung disease.
02/09/2017 – Did Science Find an Answer to the Lack of Organ Donors? – Gunnar weighs in on the possibility of growing healthy human organs inside other animals.
02/10/2017 – Doctors’ Focus Seen to Delay Lung Transplant Evaluations in CF Patients – Sticking with the transplant theme, here’s an interesting study on the decision to make a referral. Perhaps the most curious (disappointing?) fact is that only one-third of the CF center directors responded to the survey.
02/11/2017 – Deciding to Have a Second Child When Your First Child Has CF – One downside to improved Cf diagnostics is increased impact on the decision to have another child. Her is one CF mom’s take on the subject.
02/13/2017 – CF Patients Help in Defining Top 10 Priorities for Cystic Fibrosis Research – Compare your CF research priorities to the top 10 list developed by caregivers and patients in England.
02/14/2017 – People With CF: In It Together – As much as family and caregivers care for those living with CF, there is no better support than from those facing the same challenges.
02/15/2017 – Save the Date – CFFC Education Night – Speaking of support from within the CF community, CFFC announces its annual community education event. Mark your calendars. Complete the survey. Plan to join us.