For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of December 2016.
12/16/2016 – 3-D Map of CF Protein Structure May Help Determine How Disease Develops – Finding the CF gene and examining the mutations was only the beginning of understanding the disease. Scientists hope the new knowledge about the protein structure will lead to more effective treatments.
12/17/2016 – Clinical Trial Alert – 12/15/2016 – Latest update from CFF.
12/18/2016 – How CF Has Impacted My Family Planning Decisions – When it comes to having a family, where there’s the will, there’s a way.
12/19/2016 – Gene Editing White Paper – A white paper explaining gene editing, in layman’s language, has been added to CFFC’s information resources.
12/20/2016 – High Airway Glucose Levels and P. aeruginosa Infection Linked to Worsening in CF – More on the science behind the “success” of Pseudomonas aeruginosa in CF.
12/22/2016 – Study Examines Impact of CF Diagnosis on Newborns’ Parents – While the results of this study may seem obvious, we sometimes need an objective resource to recognize truths we feel subconsciously. Next step should be to develop strategies to mitigate these findings.
12/23/2016 – Asking for the Gift of Time – Wouldn’t be nice if we could make gifts of time in this holiday season? In a way we can through continued support for the programs that are producing more effective treatments.
12/24/2016 – Video Explains How Gene Editing Could Be Used for CF – Gene editing part 2. This CFF video explains the gene editing process.
12/25/2016 – December is populated with significant holidays for many religions of the world. A common theme across these holidays is birth or new beginnings. May this season bring you a renewed sense of hope for a bright future.
12/26/2016 – Scientists use ‘molecular-Lego’ to take CRISPR gene-editing tool to the next level – Gene editing part 3. Research that may improve the outcomes of gene editing.
12/27/2016 – Finding a Balance Between CF and High School – As with so many other things, CF complicates an already difficult time of life.
12/28/2016 – Bacterial ‘sabotage’ handicaps ability to resolve devastating lung inflammation in cystic fibrosis – This study explains why Pseudomonas thrives where other bacteria succumb to the bodies defenses.
12/29/2016 – Pregnancy in CF Patients Raises Risk of Diabetes and Premature Delivery, Large Study Reports – An important consideration in family planning.
12/30/2016 – Reaching Milestones in Spite of CF – Celebrating milestones is part of recognizing a full life.
12/31/2016 – Multi-drug resistant infection spreading globally among cystic fibrosis patients – Studies such as this led to stepped up procedures in hospitals (like requiring gowns for all workers) and CFF’s infection control policy.