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Apr

CFFC Facebook Posts – April 2017 – Part 2

For our web visitors who do not follow CFFC on Facebook, here are the posts added in the second half of April 2017.

04/16/2017Sick and Tired of Being Sick and Tired – Here’s Gunnar’s sentiments on something everyone living with CF will experience.

04/17/2017Finding New Purpose After Getting New Lungs – One man’s observations on the change in perspective post-transplant.

04/18/2017Novoclem’s Candidate Therapy Shows Promise Against 9 Pathogens Associated with Cystic Fibrosis Infection – More news on potential treatments for lung infections.

04/19/2017Kit Taylor Report Updated – Our report on the 37th Annual Kit Taylor Lecture has been updated to include a link to a report on BreatheCon 2016 that includes a video from the committee of CF adults who designed and managed the event. Pretty inspiring and exciting stuff. Stay tuned for news of future events produced through the BreatheCon initiative.

04/20/2017Making it Matter Ep. #36 – Cystic Fibrosis, Transplant and Motherhood – Gunnar and Julia talk with their guest, Marge Carfora, about her transplant experience – the highs and the lows.

04/21/2017New Resource for Family Planning – CFF has developed a section of their web site to provide information for CF adults thinking about starting a family.

04/22/2017 – One Month to CF Education Night – Join in the fun and learning. Help spread the word: share on your Facebook page; tell your friends in the CF community.

04/23/2017I’m a Doctor With Chronic Illness. Here Are 12 Things I Wish People Knew. – Important insights from a person who has experienced chronic illness from two perspectives.

04/24/2017Tα1 Molecule Reverses Cystic Fibrosis Tissue Defects in Mice, Study Shows – Scientists continue to identify therapies to address the CF genetic mutation.

04/25/2017CF MiniCon: Transplant – Registration opens today (4/24) for this virtual conference developed and delivered by adults living with CF. The program is supported by the Cystic Fibrosis Foundation.

04/26/2017Can Social Media Be a Dangerous Place for People With Chronic Illness? – Gunnar shares some thoughts on life in a connected world.

04/27/2017Sometimes CF Means Clarifying Friendships – A story of heartbreak that brightens with a lesson for building networks that provide support through the tough times as well as the good days.

04/28/2017Updated Health Care Alert – A new call to action from CFF regarding pending health care legislation.

04/29/2017Arch Nears First Clinical Trial of AB569 as Treatment for Antibiotic-Resistant Lung Bacteria – This study looks at a new approach to combating resistant lung infections.

04/30/2017Clinical Trial Alert – April 2017 – Latest clinical trial update from CFF.


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