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Apr

CFFC Education Night Registration Opens

Based on the responses we received to our on-line survey, we have completed the planning for Education Night on May 23rd. We have now opened our online registration to get a final count of attendees so we can fine tune the details for food and discussion space.

Please take the time to register for this event at: https://www.surveymonkey.com/r/MLKZJLR
Just answer five easy questions. If more than one member of your family will attend this event, please complete a separate registration for each person.

Here’s the program for the evening:

6:00 – 7:00: Reception – Check in; enjoy appetizers and beverages; connect with your friends and new acquaintances; visit with our sponsors.
7:00 – 7:30: Update – News of what’s happening at our clinics and hospitals.
7:45 – 8:30: Discussion – Participate in one of three discussion groups.
8:30 – 8:45: Wrap up

Based on the respondents’ preferences, the discussion topics will be:

Coping with grief, stress and depression
Adapting to life with CF: the first 5 years (understanding CF and CF care, the new “normal,” how to get help, etc.)
Caring for all of you (life style, nutrition, exercise, mental health, etc.)

As always, we are concerned about the well being of our guests. We will follow CFFC’s infection prevention protocols. Attendees who have CF will be asked to wear purple ribbons so that individuals can make informed decisions about contact with other attendees. Volunteers serving the appetizers will be instructed on infection prevention standards. We will be providing face masks and hand sanitizer. Weather permitting, outdoor space will be available for conversations.

May is CF Awareness Month. Please join us on May 23rd to enhance our awareness of various aspects of life with CF as we gather with others facing the same challenges.


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