The CF Foundation released this call for patient and family perspective on clinical trials and other topics:
The Cystic Fibrosis Foundation is looking for people who would be willing to be contacted to participate in focus groups, interviews and surveys in order to learn more about the experience of people with CF and their families. If you are interested in being contacted to participate in this type of research please consider filling out the survey below.
http://dimensions.edgeresearch.com/e.asp?p=CFF1402&S=C
Thank you very much.
Best wishes,
Cindy
Cynthia George, MSN, FNP
Senior Director of Patient Engagement
Cystic Fibrosis Foundation
6931 Arlington RD
Bethesda, MD 20814