• Welcome to CFFC! Welcome to CFFC!

    The Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families.

    Read more
  • CFFC: CFFC:

    Dedicated to supporting CF patients and families in their daily struggle with cystic fibrosis.

    Learn more about CFFC
  • Help Us Help Others Help Us Help Others

    Your contributions lend a hand to the CF community through Hospital Help Packets, information sharing events, emergency grants, and more.

    Support CFFC

Supporting Our Rochester/Finger Lakes CF Community

What is CFFC?

CFFC is dedicated to supporting CF patients and families in their daily struggle with cystic fibrosis.

Hospital Help Packets

Easing the financial burden of hospitalization. Click the link above to learn more.

Navigating the Hospital

Hospitalizations can be a very stressful time for CF patients and their families. Click the link above for facts and tips to ease this experience.

Upcoming Events

Jun
14
Fri
4:00 pm AbbVie Scholarship Deadline @ Online application
AbbVie Scholarship Deadline @ Online application
Jun 14 @ 4:00 pm – 5:00 pm
Read more about the scholarship here.
Jun
15
Sat
10:00 pm BEF Scholarship Deadline @ Boomer Esiason Foundation
BEF Scholarship Deadline @ Boomer Esiason Foundation
Jun 15 @ 10:00 pm – 11:00 pm
The Boomer Esiason Foundation’s General Academic Scholarships assist CF patients pursuing undergraduate and graduate degrees. Grants are awarded quarterly on the basis of demonstrated need [...]
Jun
21
Fri
10:00 pm Bonnie Strangio Education Scholarship Deadline @ Boomer Esiason Foundation
Bonnie Strangio Education Schola… @ Boomer Esiason Foundation
Jun 21 @ 10:00 pm – 11:00 pm
The Bonnie Strangio Education Scholarship was established in 2005 to honor the memory of Bonnie Strangio. The scholarship will be awarded to a person living [...]
Jun
26
Wed
10:00 pm Exercise for Life Scholarship Deadline @ Boomer Esiason Foundation
Exercise for Life Scholarship De… @ Boomer Esiason Foundation
Jun 26 @ 10:00 pm – 11:00 pm
The Boomer Esiason Foundation (BEF) has created a scholar-athlete award to assist cystic fibrosis (CF) high school senior athletes pursuing undergraduate degrees.  The goal is [...]
Jun
29
Sat
8:00 am Webcast on CF Genetics @ Internet streaming
Webcast on CF Genetics @ Internet streaming
Jun 29 @ 8:00 am – 9:30 am
This live CFUnite event will discuss the genes and genetics of cystic fibrosis.  What does dF508, G551D and all the other numbers actually mean?  Does it [...]
Aug
5
Mon
11:30 am 7th Annual Richard Struzzi Memorial Golf Tournament @ Blue Heron Hills Country Club
7th Annual Richard Struzzi Memor… @ Blue Heron Hills Country Club
Aug 5 @ 11:30 am – 8:00 pm
Tournament web site: http://richstruzzigivingfund.com/ Tournament contact form: http://richstruzzigivingfund.com/contact/ In Partnership with Golisano Children’s Hospital, the proceeds from the tournament will help fund the purchase of [...]
Sep
15
Sun
10:00 pm BEF Scholarship Deadline @ Boomer Esiason Foundation
BEF Scholarship Deadline @ Boomer Esiason Foundation
Sep 15 @ 10:00 pm – 11:00 pm
The Boomer Esiason Foundation’s General Academic Scholarships assist CF patients pursuing undergraduate and graduate degrees. Grants are awarded quarterly on the basis of demonstrated need [...]
Oct
5
Sat
9:00 am George Eastman Photo Finish
George Eastman Photo Finish
Oct 5 @ 9:00 am – 12:00 pm
Our own Anne Keator Governor will again be running in the George Eastman Photo Finish to raise funds for CFFC.
Dec
15
Sun
10:00 pm BEF Scholarship Deadline @ Boomer Esiason Foundation
BEF Scholarship Deadline @ Boomer Esiason Foundation
Dec 15 @ 10:00 pm – 11:00 pm
The Boomer Esiason Foundation’s General Academic Scholarships assist CF patients pursuing undergraduate and graduate degrees. Grants are awarded quarterly on the basis of demonstrated need [...]

View Calendar

 

Recent News

 

New Links